Genentech Named Founding Partner For Pulmonary Fibrosis Foundation Patient Registry Program

• Genentech, Inc.

The Pulmonary Fibrosis Foundation (PFF), the leading pulmonary fibrosis resource, has announced that Genentech, a leading biotechnology company and a member of the Roche Group, will be the Founding Partner for the PFF Patient Registry program currently in development. Genentech will provide funding to the PFF Patient Registry and to the signature programs of the PFF Care Center Network (CCN).

"We are thrilled with Genentech's unrelenting commitment to the PF community, which will continue to make a significant difference in the lives of those affected with PF," said Patti Tuomey, EdD, president and chief executive officer of the PFF. "As the Founding Partner for the PFF Patient Registry, Genentech's support is invaluable as we work to grow our key programs aimed at advancing patient care and providing critical support for patients and their families."

The PFF's mission is to raise awareness, provide disease education and advance care and funding research for the pulmonary fibrosis (PF) community. In support of its mission, the PFF plans to launch a national PFF Patient Registry, which will collect patient data to facilitate ongoing research. The PFF Patient Registry will allow researchers, through the generous contribution of medical data by patients, to gain a better understanding of how different forms of PF progress, who is affected by PF and how patients respond to different therapeutic regimens. Data from the Registry will help to inform best practices in care and identify potential treatment targets.

Medical centers that are a part of the PFF Care Center Network (CCN) will have the option of applying to participate in the PFF Patient Registry. Announced in 2013, the CCN is currently comprised of 21 medical centers in 20 states around the country that use a multidisciplinary, collaborative approach to deliver comprehensive care to patients living with PF and offer access to important support services for patients and their families. Plans are currently underway to expand the CCN to 40 sites by the end of the year.

The PFF offers essential programs available online and/or in person to those living and working with pulmonary fibrosis. These signature programs that will receive further funding from Genentech include the PFF Ambassador program, the PFF Support Group Leader Network, the PFF Disease Education Webinar Series and disease education materials.